Little Mister...AKA Kenron, is my grandson, my buddy and my little sweetheart (if you follow my blog, you already know this). For quite some time we have known about his struggles and problems but many of you haven't known. A few weeks ago, Todd and Dana sent out the following letter to family and friends to let everyone know about the struggles our sweet Kenron has had, the fight he has had to fight and the triumphant accomplishments he's made.
"Dear Family & Friends,
As many of you know, our son Kenron was born 2 month early. He is now just over 20 months old. He is our little miracle! We were told by Dana’s doctor (after lab tests were done) that Kenron was not born early because of anything during the pregnancy but because of a slight medical condition (unknown at the time) Dana has. After Kenron was born, he was Life Flighted to the Intermountain hospital in Murray. He was in the NICU for just over a month. While Kenron was in the NICU we found out that Kenron was born with a brain bleed because of his premature birth (by results from a head ultra-sound and MRI). The doctors say they don’t really know why he was born with the brain bleed but that it happens more often with premature births. There is nothing they can do for a brain bleed. The brain bleed can slow down development physically and mentally. Kenron was diagnosed with Cerebral Palsy months after birth. Cerebral palsy has many different levels of severity. We aren’t sure the severity of Kenron’s CP, however at the moment things are looking positive (that it isn’t too severe). We just have to help him and watch him grow and progress. Difficult situations may arise but both of us and the doctors are very optimistic.
The doctors said that they don’t think it will affect much of Kenron’s mental state other than it has and will slow his development down quite a bit. Kenron started sitting months after other babies usually do and still has a tiny bit of trouble with it. He is now able to army crawl small distances after working extremely hard. This is a BIG accomplishment for him & we are so proud of him every step of the way! Kenron is not yet able to crawl, stand up alone, or walk. We aren’t sure when these stepping stones will present themselves but we are working with him constantly and he has therapists help him about once a week. The doctors have all said that they don’t doubt that he will walk and run, but they do say that it may take a while longer for him to get to that point. We are very hopeful and believe that Kenron WILL be able to walk & run like every other child.
Yes cerebral palsy is a disability but every child with a “disability” is still just as special and important as any other child. It is a hard thing to hear and even harder to accept that your child may not fully develop or that others may treat him different. We have a very strong and supportive community of children with disabilities and hope to continue to feel welcome. However, we also want Kenron & us as his parents to feel welcome and loved in any situation, not just with other “disabled” children.
We aren’t telling everyone this to get attention, ask for pity, or to ask you to treat Kenron special or different. We are telling everyone this because we want to notify you about his condition and because we DON’T want Kenron to be treated different. We want everyone to treat him him exactly how they have been, like every other child. Everyone treats Kenron so well, we just want everyone to continue treating him the same.
Kenron is our little miracle baby and we constantly hope and pray for him to be able to continue to progress and develop fully. We know that there is a possibility that he may not be able to develop fully, but we hope and pray for the best. We believe in miracles! We are so proud of Kenron and how strong he is and his accomplishments. We will ALWAYS love Kenron no matter what and we hope you all can love him the same either way."
Dana & Todd"
I feel it an enormous blessing to be this little guys grandma. He's a fighter! I've watched him "army crawl" to get to something he wants so badly, pulling his legs along an inch at a time.Its hard to watch him struggle so hard, but it's also so exciting to see him finally get to what he's worked and fought to get to! Life isn't going to be handed to him on a silver platter, its going to be hard. We keep praying that Little Mister's trials will get easier as his triumphs get bigger. He is such an extremely happy boy and just makes the world around him shine! I am so humbled to be a part of his life...I love him more than words can describe and I cherish this sweet little man!!
Here's to hard work, fighting and keeping our spirits up. Little Mister lights the way for our family as we see through his eyes, that we are all "So Much Stronger Than We Think We Are".
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